We are looking for parents & carers from Sunshine & Smiles to help again this year with the Chronic Illness and Disability Project as part of the teaching of first year medical students. The aim of this project is to enable students to learn by experience about illness or disability from the point of view of the affected person (or a parent or carer). Two students will visit each volunteer to ask about their experiences of the condition (or their experiences as a carer/parent), the type of contact they have with health services and how the illness or disability affects their lives and the lives of those close to them.
This visit can take place at home or wherever is most convenient for the parent or carers. The discussion will usually last about 1 hour and is a really valuable opportunity to raise awareness and share lived experience with the next generation of medical professionals!
We would like to say a huge thank you to Headingley based accountancy & business services company, Phoenix & Wolf, who have donated the amazing sum of £5000 to help us to develop our Cafe 21 project.
Mike & Tanzi who run Phoenix & Wolf got in touch soon after seeing our pop up Cafe 21 on Look North in March this year. Since then they have been wholeheartedly supporting our work by helping to fund training & equipment such as a gazebo and Cafe 21 banners to help us to develop a strong identity for our pop up events.
The final instalment of their donation to us is to help us move Cafe 21 another step forwards, hopefully very soon!
We are so grateful for their enthusiasm and support for Cafe 21 and look forward to sharing the next stage of our journey!
One of our fabulous volunteers, Jenn Evans, is currently studying Physiotherapy at Leeds Beckett University.
She is conducting a research project titled “Understanding Lived Experiences of Parents to Children with Down syndrome in regard to Therapy”. The purpose of this study is to explore the experiences of caregivers to children with Down syndrome with regard to physiotherapy, occupational therapy, and/or speech and language therapy, and to describe these experiences.
The study is gathering information from families with children aged 2 to 6 years who have accessed physiotherapy, occupational therapy or speech & language therapy. Taking part would involve a 1 to 1.5 hour interview with Jenn which can be done face to face, over the phone, or via Skype.