There are many organisations offering support, advice and resources for children who have Down syndrome and for their families. You may find the links below useful.
Down’s Syndrome Association – Helping people with Down syndrome to live full and rewarding lives.
Leeds Mencap – Services and activities to improve the lives and opportunities of children and adults with a learning disability along with their families and carers.
Down Syndrome Training & Support Service – Support for children, young people and their families in Bradford and the surrounding area. Training for professionals, parents and carers in the specific learning needs of children and young people with Down syndrome. Helping children with Down syndrome towards a brighter, more inclusive future.
Children’s Heart Surgery Fund – A Leeds charity providing support for children born with Congenital Heart Defects and their families.
Down’s Heart Group – A charity offering support and information relating to heart conditions associated with Down syndrome.
There are also a lot of people sharing their thoughts and experiences on blogs. They all provide useful comments, advice and information direct from those most directly involved. Links to some of these are given below but please do let us know if you find any others.